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Tuesday, August 16, 2011

doctor update

I still have this stupid back pain.  I wish I knew what it was.  The CT Scan shows no kidney stones.  It does show gall stones, but the kind of pain I have does not match gall stone pain.  Where does that get me?

No one seems to know.  My PCP didn't know and questioned if it was neurological.  The urologist said it wasn't urological and probably neurological.  My next step was to call my neuro.

I called Friday.  She wasn't in.  I explained to the receptionist (the one who is BRILLANT at getting radiology appointments scheduled) what was going on, that the other doctors thought it was neuro and that the primary doc was scheduling an MRI over the weekend.  We left the conversation saying that I would call back Monday when I knew the results of that MRI.

Well, the primary's office is not nearly as brillant as the neuro's office at scheduling those radiology things.  It didn't get done and so I had no MRI over the weekend.  I didn't call the neuro Monday, since I had no results to share with her and I kinda felt like either it wasn't neuro, or if it was, there was nothing she could do about it anyway.

Monday afternoon Becky calls me.  She said Dr. Dayaw wanted to see me tomorrow.  I explained that I hadn't had the MRI done and had no results to share.  She put me on hold while she went to ask the doctor.  She came back and said, "nope, she wants to see you first thing in the morning."

"Am I dying?" was my question.  Why on earth does she want to see me first thing in the morning.  I read lots of posts online from people who have so much trouble seeing their neurologist. So why on earth is mine calling me and wanting to see me so quickly.

She said no, thankfully.  But nonetheless, the Dr. Dayaw wanted to see me the next morning.  "I have an 8:00 available," she says.

"No, I can't do 8:00.  At 8:00 I have 700 children arriving."

"Ok, I have 3:00 available."

"No, at 3:00 I have 700 children leaving."

"How about 11:00?"

"11 works just fine.  I'll be there."

So, I get there at 10:45.  The receptionist puts me in the room, but says that the doctor is running behind, so I may have to wait a little while.  I'm patient and that's perfecly fine with me.  About 30 seconds pass and I the doctor comes in.  I am surprised, as it's still not even 11:00. 

She wants to know what's going on, and I explain.  She checked out where the pain is, which incidently is located at where I believe is my kidney (which explains the urologist).  She tells me that it's not neuro pain.  Neuro pain is more generalized and not so specific. 

Clearly, she is cranky.  I'm not positive if she was cranky with me, or with the other doctors for saying they thought it was neuro.  I think it was a little of both.  Either way, the appointment ended with her telling me that it wasn't neuro and that puts me right back where I started.

She did refer me to another doctor - a neuro urologist.  I have NO FREAKEN clue what that specialty means.  I figure it must mean she is prett smart.  She must also be good, if this doctor recommends her.  I called to schedule an appointment and the next available appointment isn't until November.  November.  Good gravy train.  I didn't make the appointment. 

First, if I am in this pain from now until November, I reckon its possible I will go crazy.  Second, I did see a urologist - even if it wasn't a neuro urologist.  He cleared me, and in the process did some crazy tests.  I'm not really a big fan of being subject to those crazy tests again just so some other doctor can come up with the same conclusion.  It's not urological.

Except it feels like it is, and maybe I will just schedule that appointment after all.


Tina said...

Aw sweetie...I do hope you'll feel better soon.

What I can tell you is that, several yrs ago, I was in the ER with what I was positive was gallbladder pain. Every test came back fine, but the pain was unbelievable. I went back to the ER 3x until they began to think I wanted the narcotic. As I told them...the narcotic isn't even working, just making me not care about the tremendous pain I have in my right upper quadrant. Finally, after an argument with the doctor, I asked if it could be related to MS. He said, "you never told me you had MS. Let's try a different medication for pain." They gave me something for nerve pain (may have been neurontin) and an anti-inflammatory, which worked. My pain was neurological, which was why the typical pain meds didn't work.

For what it's worth, you can explain to your neuro that some lady you know on the internet went through pain that felt just like kidney stones (I've had them, I know exactly what the feel like) and it turned out to be neurological. As much as I didn't think the 2 could be related is as much as they were.

Good luck! Keep your readers posted!

Just a girl with MS said...

Hmmm...perhaps I should just make this appointment to go see this neuro urologist...

That's actually really good information to know. And I will definitly update when I know something.