I miss this joint!

I've been neglecting posting lately.

First, because I got a new computer.  I haven't moved the bookmarks from my old one.   But, I missed my blogging and so I've found it and come back.

Second, this whole girlfriend thing.  She's taken up quite a bit of my time, but I really enjoy it.  Last week, when I had flu day, she seemed so sad that I was going to have to take a shot every week for the rest of my life that made me have the flu for a day.

I didn't point out that this was a best case scenario.  If it stops working, it means the disease has progressed and that's worse.  But I didn't want to scare her away.  Not yet, anyway.

finally, a flu day to myself

The last couple of Avonex injections have been coincided with lots of things to get done.  Therefore, I've had to just suffer through flu day and not deal with it.  Today, finally, was flu day, and I had nothing to do.  I was able to just sleep and be.  I enjoyed it.  I've rather missed it.  It was miserable, and I was up for most of the night feeling feverish.  Even so, I've enjoyed the day as much as one can.

I saw a new doctor this week.  I wanted, and the hospital scheduled me, for an appointment with a local neurologist.  That will be much more helpful than my wonderful doctor, who is too far away.

I'm in the examination room.  She comes in, and introduces herself, but tells me I can call her Yvonne.  I just smile and warmly say hello.  She then looks at me, and says, "You don't recognize me, do you?"

I don't and have no idea where I would know her from.  All the doctors from the hospital were male, so that can't be it.

She then tells me she was a nurse for me at Camp Howe years ago.  Her name is familiar to me at this point.  Thing is, I can't remember if I liked her, or disliked her as a nurse.  Now, she's a doctor.  That's pretty cool.  As a doctor, I like her anyway, even if I didn't back then.

Avonex

On the night of my shop, I typically wake up around 4am with a fever from my Avonex.  Last night was no different.  

I got up, ate something, took some Tylenol PM and went back to sleep.  I wonder, if this medication thing is the wrong choice for me.  I know lots of people with MS who don't take meds, and I know people who MS who do.  How do I know what is the right choice for me?

snow is falling

I hate snow still, buts its a Saturday.  And it's flu day.  I timed that one so that I would just sleep though the snow.  Tomorrow, the snow ends, and I will go out and about again.

I feel surprisingly good today.  It's flu day, so I have all that going on, but otherwise good.  I guess the lovely lesions aren't doing much trouble now.  My mental space is good.  I can't complain, but I can go back to sleep while watching TIVOed NCIS.  Life is good!

Flu day

Ugh....I feel very yucky today.  I think MS is just making me nuts.   I'm having trouble seeing today...even the words on my TV are hard to make out.  Looking around just gives me a headache.  As soon as I keep my eyes forward, I'm good, but I'm super sensitive to any movement.

I think this is a combination of flu day, post steroids, and MS.  Blech blech blech.

flu day sucks

This is the second week in a row now that I haven't been able to sleep through flu day.  I can't sleep, yet I feel ridiculously awful.

I've taken some left over pain medication from when I had my wisdom teeth out.  Here's hoping it produces sleep tonight.

Shots

I usually do my Avonex shot at night, and then take some Nyquil and sleep through the worst of the side effects.  I'll take it either Friday or Saturday night, depending on my weekend plans.

This weekend I went car shopping Saturday morning.  (I got a Focus, which is not anything that I am happy with, but it was cheap and I'm desperate).

Then my best friend in the world was moving today (Sunday), so I didn't want the flu then.  So I did my shot at noon time on Saturday.  This was the first time I had done it at a time other than bedtime.

It SUCKED.  I felt miserable all day and could not fall asleep for the life of me.  Then, today my back was so sore, I wasn't all that helpful moving.  I didn't even have my subaru to fit lots of stuff in.

September 9, 2012

You're especially easy to please today, dear Sagittarius, but also very willing to do the pleasing. A general trend in your life recently is a larger focus on relationships and the joy you feel when you are with someone one on one. This is a good year for enhancing or attracting a partnership. Later today, you are especially in touch with your own motivations, as well as others. Trust your perception now.

another day

I'm taking Avonex.  It's a disease modifying drug.  I didn't want to take any meds.  I wanted to just feel ok and be one of those people that didn't take meds.  But some really smart people, including my doctor and a MS nurse said I should definitly take them.

It's meant to get easier, giving yourself a shot.  For me, it seems to just keep getting harder.  I read a news article this week that said 60% of people on these meds quit.  I wanted to be one of them. 

I skipped the med Friday night.  I quit quitting and did it Saturday night.  Despite the fact that I've felt awful today, I know its good for me.  The overwhelming feeling of sadness is the worst.  And I'm not sure if I feel that way because I physically feel bad, or if I physically feel bad because emotionally I feel bad.  Either way, today has been awful.  I'm going to bed with the knowledge that tomorrow will be better.