7th Annual MS bike run!

Today was the bike run again, and this year, I got someone to ride me :)  The condition was based on weather, but it was beautiful and off we went.  It was my very first time ever on a motorcycle and I had an absolute blast!

I was cramped a bit and my legs hurt from sitting that way, but all in all, it wasn't bad.  I totally could be a biker chick if I wanted.  I think I'd be rather cute at it.



The unfortunate thing is that the MS nurse, my favorite human being ever, wasn't there.  I thought she would be, and I'm a little worried about her.  She hasn't been at the clinic the last few times I've been there either.

So, the actual ride was a little over an hour, but it took us two hours to get to the starting place and then another two home at the end, so really, it was like a 5 hour ride.



The weather held out for most of it.  It started to rain just as we got to the end place.  Then cleared up, and we bailed early to make it home before the real storms.

Right after we took off, another shower came through.  We were soaked.  But that shower quickly passed and riding on the highway dried us off pretty quickly.

About 5 minutes after we got home a huge storm rolled in.  Thunder, lightening, the works.  I was rather shocked we didn't lose power! 

But we made it all safely, and I have successfully checked an item off my bucket list!

Rainy Days for the MS bike run

So, today was the MS bike run.  It was also a very wet day with rain constantly....it would start to settle down a bit, and then pour again.  That's not so condusive to motorcycles.  There wasn't a very large turnout.  There was a some, maybe 20, but no where near the number I saw in the video last year.

So, I'm still in my I-hate-the-medical-profession mood and I really hate MS, but I tried to just shake it all off for today.  I didn't want to be there and miserable.  That was fairly successful.  But then it looked like I wasn't going to be able to get a ride.  With not many riders, and those that were singles were happy to be singles in this rain, that meant no ride for me.

My family said that I could try again next year.  I said, "ugh, that means I'm going to have to MS a whole another year."

Um, duh!  I played it off like a joke, but when it first came out of my mouth, I think I was serious.  What the heck was I thinking?  That's definitly ridiculous.

And there was this really cute kid whose mom was in charge of selling tshirts.  Her was going around with a shirt, presumably to try and sell it.  He asked my brother in law if he wanted the shirt.  He told him he could have it for free.  We informed him we thouht he was meant to sell them, not give them away.  He really seemed surprised by that.

too much

My tonsil hurts again.  That seems so simple and yet that is what set me over the edge into everything else.

It's been too much.  It just feels like there is always something and it causes something else.  I'm so over it.

So, I have the steriods for the relapse.  Pretty basic.  Day 2, my lower back is killing me.  They do a urinalysis and find blood in my urine.  They think its kidney stones.

I go for a CTScan.  There are no kidney stones.  There are however, gallstones.

My PCP is on vacation, so the covering doctor sends me to a urologist.  I was very confused about this, as I didn't think they handled gallbladders, but went.  They don't, but he was worried about the blood in the urine.  He catherized me, which freaked me out ridiculously.  Next week he wants to do something where it sticks a camera up to see the inside of your bladder, which he has filled with water.

He also said the pain could be from this and not the gallstones.  At least that gets somewhere.  But he isn't positive.  He also think my bladder is having trouble because of my MS.  He kept going on and on about how MS can effect bladders and this is a typical thing and yadda yadda yadda.  I'd really wished I just never told him I had MS.

So, and I know my thinking is definitly illogical now, but I feel like I'm done with doctors and this MS crap.  It just seems the more I go and try with deal with something, the more things that they either find, or become wrong.  I just want to quit them all, and go back to my life where I NEVER went to the doctor.  I got a physical every other year and maybe strep throat.  But going to the doctor was not part of my routine. 

The MS bike run is tomorrow.  I was so ridiculously excited for it.  I still am, if I get to ride on a bike.  But I am not excited about seeing people who have these great relationships with the MS center and their doctors and all that jazz.  I don't want anyone to ask me how I am, and either just say that I'm great, or tell them I'm done with all this MS stuff.  I don't want to see my doctor, of whom I normally love.  She's just one of them right now.  I don't want to see that MS nurse, because her I would tell how I feel and she'll try to talk me out of it.  Pretty much, I just need to keep a happy face on and not mention how I feel.