I'm so happy to have power, tv and internet back in my life. I have to admit, it was nice to be without these things, as all I did was sleep. Pretty much from when the sun went down. It was very nice to catch up on sleep, but now I'm happy to catch up on facebook, blogs, twitter, news....all those happy things.
I did loose 2 doses of Avonex in the power failure. That SUCKS, but good news is that Avonex will replace them. There was 3 in the box, but one will still be fine for me to take this weekend, so it's just two.
I've missed blogging, but thankfully, I've had little to blog about. I feel well, except for this disc in the back thing. I have an appointment with my doc and nurse tomorrow at the MS center. I'm super excited to go there and tell them things are good.
Showing posts with label MS nurse. Show all posts
Showing posts with label MS nurse. Show all posts
Wednesday, August 31, 2011
Saturday, July 23, 2011
questions that don't have answers
"I just try to remember GOD picked us strong people because an ordinary person couldn't manage and deal with this disease!!"
Someone posted this on a MS message board. It was in a category labeled "guilt" and is totally meant to be inspirational and uplifting.
That's not how I take it, at least today. I'm mad that I have MS and constantly asking, "why me?" Which, I know is a useless question.
I feel so hopeless about the future. I talked to Kay, the MS nurse today. She is so freaken positive, it's unbelievable. I just want 1/10th of what she has. She has this incredible spirit and attitude and is just wonderful. She says to give it a year. Give it a year to settle and then things will get better.
I wonder if she's right. I can't see how it can get better. I feel like I'm a miserable failure at everything I try. The thing is, I can tell myself to wait a full year. Evaluate and see how I feel. But then what? What do I do after a year if things still arn't better? I only see impossibilities getting through the next 5 weeks. How I am going to last 4 months? And then beyond that...
Someone posted this on a MS message board. It was in a category labeled "guilt" and is totally meant to be inspirational and uplifting.
That's not how I take it, at least today. I'm mad that I have MS and constantly asking, "why me?" Which, I know is a useless question.
I feel so hopeless about the future. I talked to Kay, the MS nurse today. She is so freaken positive, it's unbelievable. I just want 1/10th of what she has. She has this incredible spirit and attitude and is just wonderful. She says to give it a year. Give it a year to settle and then things will get better.
I wonder if she's right. I can't see how it can get better. I feel like I'm a miserable failure at everything I try. The thing is, I can tell myself to wait a full year. Evaluate and see how I feel. But then what? What do I do after a year if things still arn't better? I only see impossibilities getting through the next 5 weeks. How I am going to last 4 months? And then beyond that...
Saturday, July 16, 2011
Am I lucky?
My MS nurse has MS as well....when she was first diagnosed the medications were just being put on the market for it. She got to take something, because she won a lottery. That's crazy to me. I still consider not taking anything, and using the wait-and-see approach. Then, I hear about her and how privledged she felt to get to take medication and I feel completely ridiculous.
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