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Tuesday, November 29, 2011


My new job came with new insurance.  They said they didn't cover Avonex.  I had to use Rebief.  I don't have anything against this other drug, I'm just used to Avonex now.

Today, I was on the phone with the new specialty pharmacy working on the order.  He said, "Your case is on stage 6.  You've done most of the work already."

Actually, I did very little work.  I called my doctor's office.  That's about it.  They are BRILLANT.  I'm fairly certain it was entirely them that made it happen so quickly!  Dr. Dayaw is brillant and the staff there are so efficient.

I had an appointment to see her in December at the MS Center, but canceled it today.  The new insurance company also requires me to get a referral to see her, but the new primary will not accept me as a patient until they get my medical records from my previous doctor, and I imagine that will take longer than getting to her appointment.  I canceled it today with hopes that someone else can still get into that appointment.  And I resheduled for January, so it's all good.

Sunday, November 27, 2011

Thanksgiving, birthdays

Ugh.  I'm sick.  Just regular sick, not MS sick, but I feel yucky.

Thanksgiving was good.  I went to a friend's house and we had a good time.  Her fiance was there, with his children, and all of her children. 

My birthday was also good.  We went to Golden Coral for dinner.  They now have a chocolate fountain, which is delicious.  I made chocolate covered strawberries, marshmellows, pineapple, and apples.  While eating them, I was geting chocoalte everywhere.  My friend said, Heidi, you are covered in chocolate.

I replied, without even looking at her: "Its my birthday and I have MS."

It was a pretty funny moment :)

Mrs. Clause was there to celebrate Black Friday I imagine.  She, and a bunch of waitors, sang Happy Birthday.  That's always fun.

And then Saturday hit, and I'm sick.  Blah.  I've spent most of the day sleeping.

Wednesday, November 23, 2011

so far so good

Well, I figured I would definitly have a flare after everything that has happened in the last few weeks.  Moving.  New job.  Death of my mother.  Surely all those things put together would bring it on.

It hasn't, or at least not yet.  I don't feel particularly well, but I just feel sick.  Not MS sick, just plain old regular sick.  It's not even that bad.  So, knock on wood, all is going well.

Saturday, November 12, 2011

Another shot...missed

I missed my shot the night my mom died.  I kept meaning to do it, and then I was 5 days late doing I just skipped that week.  I did it the next week, and had major side effects.

Now, tonight I took it out the fridge earlier and I can't freaken find it now that its time to take it.  I'm super annoyed.  I remember taking it out, and then, have no idea.  I don't want to take another out, as I'm already a little screwed when it comes to getting more.

I had 4 doses, which would at least give me time to get it organized.

Ahhh!  I have a fairly small apartment.  Where the heck is it?

Monday, November 7, 2011

The death of a mother is the first sorrow wept without her.

In the midst of moving and starting a new job, my mom passed away.  My wonderful, happy, amazing mother.  She drove me crazy, but she always cared 100%.  I was her only child, and she cherished me.  I don't think I ever realized how much I cherished her until she was gone.  It's been 9 days now.  There have been 9 days of my life that she has not been on this planet. 

I miss her terribly.  I would give anything just to be able to talk to her one more time.  To hug her one more time.  To listen to her ramble one more time.  To deal with her pack-rat tendancies one more time. 

I love you mom....I hope you know how much.