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Tuesday, September 20, 2011

How could anyone? By Libby Roderick

How could anyone ever tell you, you were anything less than beautiful?
How could anyone ever tell you, you were less than whole?
How could anyone fail to notice, that your loving is a miracle,
How deeply you're connected to my soul

Thursday, September 15, 2011

another item for the list

I missed the event tonight.  The board meeting went too late.  When I got there, the room was full and it would have been very awkard to walk in.  I couldn't do it.

This is just another reason why I can't live the life I want and have this stupid disease.  Tonight was just pure irony that both were so closely connected.

Wednesday, September 14, 2011

Funny how that happens

I had my support group tonight. There was a woman there who could have been me in 10 years if my life didn't happen the way it did. She refused to take any DMDs, didn't trust her neurologist, and wasn't completely certain she had MS. Her rational was that they tested her for so many things and finally settled on MS.

My thinking is that they ruled out other possibilities to figure out what it was.

But had I not moved out here, went to this MS center, met Kay and Dr. Dayaw, I totally could have turned into her. That's scary.

Granted, I hate my stupid shot, but I know I'm doing something to make my life better. I'm not fighting treatment or burying my head in the sand. I hope she figures that out too. It's scary and horrible, but the alternative is worse.

Sunday, September 11, 2011

Week o' fun

This will be an informative MS week for me. I have the support group Wednesday and the newly diagnosed workshop Thursday.

Friday, September 9, 2011

New phone

So, I've finally done it and gotten an iPhone. I found the blogger app and it's quite possible I will blog more :). For now, here's some turkeys hanging around my camp.

Hating people is like burning down your house to kill a rat.

Every year, my doctor runs a workshop for people that are newly diagnosed with MS.  I saw some posts for the previous ones, and I was pretty excited to hear she is running one this year.  I RSVPed and everything and was very excited to go. 
https://secure2.convio.net/msaa/site/Calendar/300774020?JServSessionIdr004=occczzhbm2.app214a&view=Detail&id=147702

This week, I've found out we have our first board meeting after the summer that night.  That SUCKS.   I'm trying to work out who to call (the number just goes to an RSVP voice mail) to find out ifI can show up a little late.  The program is 2 hours long, and I reckon I can be there only 15 minutes late...maybe a half hour.

It says though, that space is extremely limited.  If there is that much demand for it, I don't want to take the spot for someone who can be there the whole time.  That's a little messed up.

Friday, September 2, 2011

hi ho hi ho, it's off to camp I go

I work at camp, and so it should be no big deal....but I'm going to a camp I used to work at, that I love tomorrow for their Labor Day family camp.  I'm really looking forward to seeing some old friends and enjoying the outdoors!

Thursday, September 1, 2011

another doctor visit

Today was my doctor's appointment.  I don't know what I expected to happen, but I left feeling horrible.  Nothing was meant to happen, or should have happened, and still, I just felt like crying.

I supose it was a combination of two things.

1.  The MS nurse wasn't there, and I was really looking foward to seeing her.  She was out sick today.  That made me a little bummed.

2. She asked me about depressing and feeling sad and what not.  She asked me what was causing it - MS or the meds or what not.  I have no freaking idea.  I just know that I don't feel like me anymore.  I started to tell her, and could feel myself wanting to cry, so I just kind of stopped where I was.  Not that I want her to do anything about it - I don't want to take any more meds that necessary.  I just left feeling like crap I guess.